Carers often give significant support to the person they support. This can sometimes lead to the carer needing support themselves.

If after an assessment, you are found to be eligible for services, what is put in place could be anything that could help you to care for an autistic child or adult or to have a break. It may take the form of:

• physical help - such as assistance in the home, help with gardening, help with laundry
• other forms of support - such as trips/holidays, travel assistance, training, or short breaks (see below for more information about short breaks).
• a direct payment so you can purchase agreed services or items yourself

Direct payments

A Direct payment is money given directly to carers instead of services. The aim is to give more choice and control to the person receiving the money and more flexibility. For example, some carers have used their direct payment to purchase driving lessons, pay for gym classes or to pay a friend or relative to look after the person they care for so they can have a break.

Short breaks

Short breaks, sometimes known as respite, allow you to take a break from your caring responsibilities. Many carers of autistic adults and children really value having some time to themselves when they aren’t required to focus on the needs of the person they care for.

The person you care for may spend some time away from the home or you may spend time away, knowing that the person you care for is being looked after. The type of short breaks available vary significantly depending on the age of the person and the level of their needs.

Services could include:

• home-based respite care – eg a sitting service for a few hours a week or a personal assistant to stay overnight
• family-based short-term respite care - this is where a disabled person is linked with a family who they then go to stay with on a regular basis
• centre-based short-term residential care
• after-school activities or youth clubs
• a joint holiday.

Next steps

Our Autism Services Directory has details of  local and national organisations to help autistic people and their families.

Carers UK has lots of information for carers, including information on assessments, support available for carers and Carers Allowance.

Carers Trust has a UK wide network to support carers in their homes, as well as specialist services.

There's more information about personal budgets and direct payments for carers on the NHS website. 

Visit the My Adult - Still My Child website, aimed at those new to making Best Interest Decisions and especially those caring for a young person in transition to adult services.

Mencap has information on the Mental Capacity Act and supporting people to make decisions.

Contact a Family has information for families with disabled children.

The Respite Association provides short term assistance in the funding of respite care to allow regular carers to take a break.